Our story began on Wednesday 10th January 2018, it was the day of our 12 weeks scan we eagerly arrived at Warrington Hospital with our two other children, Harry & Sophia. Upon entering the waiting room, we gave our details at the reception desk and was told to take a seat, we noticed we had to buy a stamp from a vending machine to purchase a scan picture which we did. We heard our names shouted so we entered the room, mum lied on the bed and the sonographer began to scan, a couple of minutes in we were told something didn’t appear quite right and in fact our baby had no head and that our baby wasn’t going to survive, we were walked into a private room both distraught and the kids not knowing what was going on. After some time, we went home and researched the diagnosis, exencephaly, what was it? Would our baby survive? Was it a mistake? No! the more we looked the more we knew our baby wouldn’t survive we connected with other people all over the world, their babies had all died!